Paediatric Palliative care across Australia: Clinical and demographic

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Paediatric Palliative care across Australia: Clinical and demographic characteristics and need

Oral Presentation Concurrent Sessions

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Oral Presentation - Concurrent Sessions

3:15 pm

13 September 2023

Level 4 - Room 4.5

Stream 2D | Concurrent Session | Caring for specific populations – Paediatric

Presentation Streams

Quality palliative care for diverse populations, both for consumers and service providers

Presentation Description

Institution: Cancer and Palliative Care Outcomes Centre, Centre for Healthcare Transformation, Queensland University of Technology - Queensland, Australia

Please note: The final report for this project is currently being prepared for submission to PCA/PaPCANZ. As agreed with the Paediatric Palliative Care National Action Plan Project Manager, the specific results of the project are being withheld from the abstract to ensure that findings are not disclosed prior to the finalisation of the project report. Results will not be under embargo at the time of the conference.

Background: Palliative Care Australia and Paediatric Palliative Care Australia and New Zealand, received funding from the Australian Government as part of the Supporting Children with Life Threatening Medical Conditions and their Families 2019 election commitment, to collaboratively deliver a Paediatric Palliative Care National Action Plan (National Action Plan). This research study is one of several activities conducted to address the National Action Plan project objectives.

Aims: For the 2018 and 2019 calendar years: 1. Identify Queensland patient groups who are referred late to specialist paediatric palliative care or are not referred at all. 2. Undertake a baseline study of paediatric palliative care need in Queensland and extrapolate to the Australian population, to provide a national snapshot of children with high medical needs and life-limiting conditions.

Methods: Routinely collected Queensland Health hospital admitted data, emergency presentation data, perinatal data, death registration data and Children’s Health Queensland Paediatric Palliative care data, were linked by Queensland Statistical Services Branch. Data were extracted for children and young people aged 0 to 21 years who had at least one life-limiting condition identified in any of the data collections of interest. International Statistical Classification of Diseases and Related Health Problems, Tenth Revision, Australian Modification codes, as cross-matched to the Hain’s Directory of Life-limiting Conditions, were used to identify conditions eligible for inclusion. Case studies detailing the experiences of Hummingbird House, Queensland’s only children’s hospice, and experiences of families who have received paediatric palliative care, were used to help bring real-world context to the administrative data.

Results: We will present the clinical and demographic characteristics of the Queensland cohort for the 2018 and 2018 calendar years. Findings will be extrapolated to the Australian population. The context and meaning of the findings will be discussed.

Presenters

Dr Alison Bowers

Research Fellow

Queensland University of Technology - Brisbane, Australia

Dr Gursharan Singh

Research Fellow in Palliative Care

Queensland University of Technology - Brisbane, Australia

Authors

Dr Alison Bowers PhD, MClinRes, BN (Child), RN, RN (Child), MACN, MRCN - Cancer and Palliative Care Outcomes Centre, Centre for Healthcare Transformation, Queensland University of Technology , Dr Zoe Dettrick PhD - Queensland University of Technology , A/Prof Anthony Herbert MBBS, BMedSc, FRACP, FAChPM - Children's Health Queensland Hospital and Health Service , Professor Natalie Bradford PhD MPH BNur RN - Cancer and Palliative Care Outcomes Centre, Centre for Healthcare Transformation, Queensland University of Technology , A/Prof Stuart Ekberg PhD - Queensland University of Technology , Distinguished Professor Patsy Yates AM, PhD - Centre for Health Care Transformation, Queensland University of Technology , Dr Katie Ekberg BPsych (hons), GCertScTechComclsn, PhD - Queensland University of Technology , Ms Alison McLarty BN - Children's Health Queensland Hospital and Health Service , Dr Gursharan Singh BMedSc (Hons), PhD - Cancer and Palliative Care Outcomes Centre, Centre for Healthcare Transformation, Queensland University of Technology

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Paediatric Palliative care across Australia: Clinical and demographic characteristics and need

Presentation Streams

Presentation Description

Presenters

Authors

Authors